Finding a solution for PKAN

Spoonbill Foundation and our sister organization Stichting Lepelaar were founded with the goal to discover, develop, and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community, as swiftly as possible and at the lowest cost.

We know PKAN. For 26 years, we have cared for hundreds of people with PKAN, hunted and found the causative gene, discovered key pathologic and biochemical features of the disease, engineered the best animal disease models, and relentlessly pursued rational therapeutics with urgency and purpose. We are global leaders with a strong connection to the PKAN family community worldwide. Together, we are unstoppable.

Learn more about our near term goals and how we aim to achieve them.